Responsible Health Care and Organ Donation

 Sharing Life, Preparing for Death – Responsible Health Care and Organ Donation

Feedback from the break-out sessions by table

  1. Practical and Pastoral Issues

We looked at the very worrying BME stats whereby BME people are 25% of waiting lists for donors, have far higher refusal rates, wait longer, have higher failure rates.

How best to disseminate information about organ donation etc to our communities?

  • When they’re young, without frightening them, making it ok to talk about death
  • in Secondary schools
  • Tell people they can register online, via smartphone app, Facebook, Twitter
  • Via sermons in houses of worship – need to educate imams, priests, rabbis etc so that everyone is confident to deliver an accurate and useful message. Nota ser to convince people what they must do but to encourage them to look into it, and work out what they would want done one day. So many congregants lack knowledge of whether it’s even allowed in their faith or not, so this would help them make an informed choice.
  • Via community groups, youth groups, health groups, football, corner shops, supermarkets

BMFF could offer organ donation as a sermon topic so that faith leaders can address it, ideally all in the same week or month.  However, Muslim and other faith leaders would first need to discuss it among themselves, as a variety of theological interpretations do exist. Faith leader pronouncements can help and can also be damaging so this needs to be done with care. Goal: to enable people to enquire and make their own decisions.

We need to know the actual stats here in Bristol for BME (Afro-Caribbean and South Asian) people waiting for a kidney donor, on dialysis etc.

How do we prompt these health message conversations (not pre-prepared solutions)?

  • Best way is to use existing, strong community networks
  • For example, if Mr Mukhtyar Singh, recipient of a kidney transplant, were to tell his story, it would open up the topic so that people could make their own choice.
  • Sikh Channel on TV is very influential for that community

Call to action: how can we individually and collectively promote these informed conversations?

Action: Mukhtyar to organise a meeting to discuss this and get debate going about how to get these messages started in the communities.

  1. How to help people with end of life decisions

This requires education, starting with young children, don’t be afraid to discuss

Conversations about this need to be timely/early, i.e. not in times of crisis

We want people to feel equipped to make the decision within their own family

Need to release people to enquire about their own tradition

many assumptions about death and dying are culturally, not scripturally, based

Hesitancy regarding organ donation, we just don’t know whether our faith allows it. Well before moment of heart stopping. No compulsion that everyone should give their entire bodies.

Need to consult with people, inform people and see their wishes as sacred.

Some people may have the issue that they may wish to donate but it is clinically not possible.

  1. Spiritual Journey and what death means from a faith perspective

What is chaplaincy?

  • Ministry and support at point of need, listening, being alongside people
  • Let them share their own spiritual biography (chaplains cannot access their faith data from intake forms). Wait for family to tell us their religion.
  • Absolutely no proselytising.



  • Many seem to have very little or no faith-related knowledge including the specific needs of various groups e.g. Rastafarian patients
  • Some did not know about how the chaplaincy operates, or whether/when services happen


Chapels in hospitals or hospices
  • Have largely been replaced by multifaith spaces of sanctuary
  • People of any faith or none, may find comfort in a quiet space that is set aside for this purpose
Privacy/dignity as death approaches
  • ICU has adapted, make a point of stepping back to allow families to come forward
  • Inappropriateness of conducting end of life rituals in an open ward where priest as well as large number of family may come together
  • Can private rooms be used? Often reserved for those with infectious diseases rather than nearness of death


  • When someone is dying, they undertake a spiritual life passage/journey
  • It’s a very precious and charged time, emotions run high
  • A relationship of trust with the medical professionals is key
  • The meaning of death itself varies: an end, a beginning, a cycle, a connection
  • People can gain enriched understanding of the different traditions around this journey through attending interfaith dialogue.


Issues around the next generation(s)

  • Increase of secularity on the one  hand but huge/growing spiritual awareness on the other
  • We need to avoid imposing our own personal faith perspective
  • With younger people, we need a new form of language to explain/help them explore the metaphysical and spiritual aspects of life, e.g. poetry and art, as well as Scriptures
  • Majority of people in prison are of no faith


  • Lack of clarity as to who can use them
  • Not for Christians only (but name such as St Peters can be confusing)
  • Some people frightened to go there as they think it’s only to die and not to live



  • Children are never too young to talk about/look at these issues in an appropriate way. One group member mentioned on a recent school visit that 50% of Year Two (age 6 – 7 year olds) knew someone who’d died.
  • Can we make better use of schools to explore the richness of faiths and their broad unity?
  • Discussing death and sense of spirituality
  • Explore with them the meaning of living and of dying: what is a good life? A good death? (this was the topic of an evening seminar conducted by the Bristol Inter Faith Group a few years ago)

Notes written by Valerie Russell Emmott


Faith Watch

Faith Watch can help you: it is based on the idea that formed Neighbourhood Watch and is an opportunity for faith communities in Bristol to work together to communicate any concerns. Faith watch is coordinated and supported by Avon and Somerset Police.

Neighbourhood watch began back in 1982 and is based in a street or number of streets. Faith communities are often dotted across the city.

Faith watch aims:

  • To reduce crime and the opportunities for crime
  • To help and reassure the community
  • To encourage neighbourliness and closer communities
  • To communicate with members fo faith watch, making them aware of any incidents that may affect them.

As part of a Faith Watch group you will find there is a heightened awareness of what is going on in and around your area. Messages are forwarded to watch volunteers to inform them of crime trends, provide public information and to offer crime reduction advice

The elderly and most vulnerable members of the community feel more secure.

A community spirit grows within the area.

Police Community Support Officers and Beat Managers working with faith groups build a closer relationship.

To find out more, please contact Cliff Spence, Diversity Officer at Avon and Somerset Police (0117 9529720)

Actively Peaceful

The rain held off, the people came and the media captured our joy.

After a rapid, very short month of sometimes frantic planning and on-the-hoof rethinking of the day, All Together Bristol finally happened and I for one am overjoyed at the result. Thirty-two days after our first forum exploration of what we might do, what we shouldn’t do, and what we — eventually — simply must do, the turnout and the message was just perfect.

After the day before, when Bristol seemed wracked by fear and conflict, hate and prejudice, the All Together Bristol approach was just right.

But what actually happened?

We gathered on Queen Square. Gradually people came together, from a cross the four corners of the square, site of the EDL march the previous day, and kicking off point for our walk to Millennium Square. A platform, a microphone and flowers appeared. People were handed helpers jackets. It’s interesting how people respond to a hi-viz. Immediately the wearer is transformed into a creature ordained with extra powers of knowledge or ability. But, notably, without any hint of the inevitable marshal nature of the police lines from the day before. There: I’ve mentioned it. It’s tricky not to. The EDL effect is invasive and destructive, but there was one good thing about their visit to Bristol: we met on 15th July and showed the city how peace can prevail.

The media were everywhere. Radio Bristol, ITV, BBC TV, This is Bristol and also The Post. One of our core aims was to get good press coverage. That happened for sure. First items on both ITV and BBC local news. Radio Bristol Sunday morning, including a video montage. Depending on who did the counting we were between 300 and 400 people, but thousands more will have seen the full extent and positive power of what we achieved.

But, again, what actually happened?

The flowers worked. The walking worked. Walking with flowers worked.

And, significantly, for about an hour afterwards, as I just hung around the square, there were people talking, groups continuing to share and engage. Amongst the buzz and business of Millennium Square, as it is every summer Sunday afternoon, there was an extra dimension of hopeful imagination. Where we go from here needs to be discerned. That we need to continue to work together needs no thought at all.

That is what actually happened. We met, we talked, we shared and we saw each other as members of the same group, as people. Of course there are distinguishing features, and there are differences which challenge. But challenge and conflict are entirely different things. Conflict destroys. Challenge builds. On July 15th in Millennium Square we all challenged. We all were challenged: to live together.